<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[SCDAA.CT ]]></title><description><![CDATA[MichellesHouseCT]]></description><link>https://www.scdaact.org/blog</link><generator>RSS for Node</generator><lastBuildDate>Sat, 22 Aug 2026 03:05:16 GMT</lastBuildDate><atom:link href="https://www.scdaact.org/blog-feed.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[St. Patrick’s Day at Michelle’s House: A Celebration of Community, Culture, and Visibility]]></title><description><![CDATA[Every March, the streets of New Haven come alive with music, color, and tradition as the annual St. Patrick’s Day Parade winds its way through the city. What many people don’t know is that Michelle’s House SCDAA-CT , located at 1389 Chapel Street , sits right along the parade route—giving us a front row seat to one of the region’s most cherished cultural events. This year, our team stepped outside to enjoy the celebration and capture a few photos as the parade passed by our front door. The...]]></description><link>https://www.scdaact.org/post/st-patrick-s-day-at-michelle-s-house-a-celebration-of-community-culture-and-visibility</link><guid isPermaLink="false">69b83fa5da52b219c85fe32d</guid><pubDate>Mon, 16 Mar 2026 18:01:51 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/89e63d_3631aecb5caf4a9294809b38bd5ccbed~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>scdaact</dc:creator></item><item><title><![CDATA[Mind of a Warrior Tutoring — Empowering Students Who Miss School Due to Sickle Cell Disease]]></title><description><![CDATA[Students living with Sickle Cell Disease often miss dozens of school days each year  due to pain crises, hospitalizations, fatigue, and ongoing medical care. These interruptions can make it incredibly difficult to keep up academically, maintain confidence, and feel supported in the classroom. Mind of a Warrior Tutoring  exists to close that gap. This youth-led organization offers FREE, high-quality virtual tutoring for students K–12 with Sickle Cell Disease , providing exactly what many...]]></description><link>https://www.scdaact.org/post/mind-of-a-warrior-tutoring-empowering-students-who-miss-school-due-to-sickle-cell-disease</link><guid isPermaLink="false">6995d697efa15866f1eeff2b</guid><pubDate>Wed, 18 Feb 2026 15:21:19 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/89e63d_24948f6e7b174bdb821120d7f0c6bab1~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>scdaact</dc:creator></item><item><title><![CDATA[- Black History Month 2026: Celebrating Voices in Sickle Cell Awareness]]></title><description><![CDATA[This Black History Month, Michelle’s House SCDAA-CT proudly joins the global sickle cell community in honoring public figures who have lived with Sickle Cell Disease, carried the trait, or used their platforms to advocate for awareness and change. Throughout the month, we will highlight individuals whose resilience, creativity, and leadership have inspired millions. Their stories remind us that sickle cell warriors are innovators, artists, athletes, scholars, and changemakers — shaping...]]></description><link>https://www.scdaact.org/post/black-history-month-2026-celebrating-voices-in-sickle-cell-awareness</link><guid isPermaLink="false">698b8a4a5ce248ef4486f70f</guid><pubDate>Tue, 10 Feb 2026 20:43:21 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/89e63d_650f047b3a8b4cd58675c09606134b52~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>scdaact</dc:creator></item><item><title><![CDATA[The Unseen Struggle: Living with Sickle Cell Disease]]></title><description><![CDATA[Living with sickle cell disease (SCD) can be a constant battle. The pain, the fatigue, the hospital visits – it's a cycle that can feel...]]></description><link>https://www.scdaact.org/post/the-unseen-struggle-living-with-sickle-cell-disease</link><guid isPermaLink="false">669fb7dc4cc7a53b0d7b0417</guid><pubDate>Tue, 23 Jul 2024 14:12:47 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/2b9aae_790591e4138b4f19a82618621268b101~mv2.png/v1/fit/w_847,h_568,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Funmilayo Rufai</dc:creator></item><item><title><![CDATA[Unlocking Hope: Recent Breakthroughs in Sickle Cell Disease Research]]></title><description><![CDATA[Sickle cell disease (SCD) research has made significant strides in recent years, offering new hope for patients and families affected by...]]></description><link>https://www.scdaact.org/post/unlocking-hope-recent-breakthroughs-in-sickle-cell-disease-research</link><guid isPermaLink="false">668fe9c28ebf26cf216f71d9</guid><pubDate>Thu, 11 Jul 2024 14:28:19 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/2b9aae_adf947a46fb948cd857b36fec7650c41~mv2.webp/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Funmilayo Rufai</dc:creator></item><item><title><![CDATA[Juneteenth Sickle Cell Awareness and Trait Testing Event: A Resounding Success!]]></title><description><![CDATA[On June 22nd, 2024, Michelle's House proudly participated in the Juneteenth celebration at Dixwell Q-House in New Haven CT. Our team set...]]></description><link>https://www.scdaact.org/post/juneteenth-sickle-cell-awareness-and-trait-testing-event-a-resounding-success</link><guid isPermaLink="false">668438c4fc2a5835223b322c</guid><pubDate>Tue, 02 Jul 2024 17:49:59 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/2b9aae_d5da24fb215d425e86b717408075b1b6~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Funmilayo Rufai</dc:creator></item><item><title><![CDATA[Boost Your Career!]]></title><description><![CDATA[Job Opportunities: We’re Changing the Shape of Sickle Cell Disease Improving the health and wellbeing of Connecticut’s sickle cell...]]></description><link>https://www.scdaact.org/post/boost-your-career</link><guid isPermaLink="false">642f0eb3c60994f26b7d7093</guid><pubDate>Thu, 06 Apr 2023 18:41:18 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/11062b_2a63d8630d624c66973ec45eb74a2a91~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[Join a Research Study on Diet and Nutrition]]></title><description><![CDATA[Researchers at the National Institutes of Health want to learn more about how diet and nutrition affect the physical and mental health of...]]></description><link>https://www.scdaact.org/post/join-a-research-study-on-diet-and-nutrition</link><guid isPermaLink="false">63faa9c25d825ce71e644d79</guid><pubDate>Sun, 26 Feb 2023 00:42:16 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/644c41_80bd1f71a2014970b4c4ba6223234778~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[National SCD Policy Forum March 21-22, 2023]]></title><description><![CDATA[Your Advocates for Sickle Cell SCDAA President and CEO Regina Hartfield visited Capitol Hill in Washington, D.C., to connect with federal...]]></description><link>https://www.scdaact.org/post/your-advocates-for-sickle-cell</link><guid isPermaLink="false">63faa5883362ef4f0b0c931f</guid><pubDate>Sun, 26 Feb 2023 00:22:22 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/644c41_3f3669e9782548ed8f6e8c5575a7b83a~mv2.jpg/v1/fit/w_640,h_480,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[Sickle Cell Fact Sheet Now Available in Spanish]]></title><description><![CDATA[Important news for all Spanish speakers! The National Heart, Lung, and Blood Institute (NHLBI) Sickle Cell Disease Fact Sheet is now...]]></description><link>https://www.scdaact.org/post/sickle-cell-fact-sheet-now-available-in-spanish</link><guid isPermaLink="false">63faa3b0f542f83dafd6cda5</guid><pubDate>Sun, 26 Feb 2023 00:17:01 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/08327269a53a4f3086602a15c0e6b362.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[Recruiting Now for the Spring 2023 CHW Training Cohort!]]></title><description><![CDATA[Gain the skills and knowledge you need to become a successful SCD community health worker (CHW). SCDAA's training program starts March 6...]]></description><link>https://www.scdaact.org/post/recruiting-now-for-the-spring-2023-chw-training-cohort</link><guid isPermaLink="false">63faa24a5359cd03a761f73a</guid><pubDate>Sun, 26 Feb 2023 00:08:22 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/644c41_9e7aa3aa29a54d399ffb4ff54bb77e2b~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[Honoring Hertz]]></title><description><![CDATA[Haitian born Painter &#38; Advocate for Sickle Cell Disease Hertz Nazaire was born on October 2, 1973, in Port-Au-Prince, Haiti. At the age...]]></description><link>https://www.scdaact.org/post/honoring-hertz</link><guid isPermaLink="false">63fa99983493afdbf62cbf8b</guid><pubDate>Sun, 26 Feb 2023 00:01:22 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/644c41_d49e73292c11492fadd9f37c596d979d~mv2.jpg/v1/fit/w_1000,h_688,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[PENICILLIN SHORTAGE]]></title><description><![CDATA[A Special Statement From MARAC Penicillin VK solution is suffering from intermittent supply shortages. This can affect children with...]]></description><link>https://www.scdaact.org/post/special-statement-from-marac</link><guid isPermaLink="false">63e4302d7ec79315039bda32</guid><pubDate>Thu, 09 Feb 2023 00:01:08 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/74c55ccbb34f49049c1583268b68fd70.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[MARAC Advisory: COVID-19 and Sickle Cell Disease]]></title><description><![CDATA[March 2022 – The Sickle Cell Disease Association of America’s Medical and Research Advisory Committee notes that news about COVID-19...]]></description><link>https://www.scdaact.org/post/marac-advisory-covid-19-and-sickle-cell-disease</link><guid isPermaLink="false">62668b7d6fab74e730cdba30</guid><pubDate>Mon, 25 Apr 2022 12:02:55 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/11062b_5a743c177e234d50a784e5b39173d924~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[FREE Sickle Cell Trait Screenings]]></title><description><![CDATA[NEW HAVEN – Michelle’s House is scheduling appointments for screenings for the Sickle Cell Trait (SCT), supported by genetic counseling,...]]></description><link>https://www.scdaact.org/post/free-sickle-cell-trait-screenings</link><guid isPermaLink="false">62414034f331b59245c9ae67</guid><pubDate>Mon, 28 Mar 2022 05:02:10 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/644c41_7230d8c4cb624706922642f830191629~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[It Was A Great Day for a Run!]]></title><description><![CDATA[Our annual Walk, James Barber 5K Run &#38; Bike help sustain the critical programs that we provide statewide at Michelle’s House. The support...]]></description><link>https://www.scdaact.org/post/it-was-a-great-day-for-a-run</link><guid isPermaLink="false">61e5bc18a816cc001647decc</guid><pubDate>Mon, 17 Jan 2022 19:33:13 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/644c41_33e21ed49509463d9aa2a2000976d799~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[The Loss of Hertz Nazaire]]></title><description><![CDATA[Hertz, pictured October 26, 2021, with his puzzle art “The world is a little brighter within pain” which is displayed at Global Blood...]]></description><link>https://www.scdaact.org/post/the-loss-of-hertz-nazaire</link><guid isPermaLink="false">617deb57babac30016080414</guid><pubDate>Sun, 31 Oct 2021 01:06:53 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/644c41_b9bcf386669040f686c82c03b5436b49~mv2.jpg/v1/fit/w_1000,h_810,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[The Impact Of Sickle Cell Disease]]></title><description><![CDATA[Sickle cell disease patients and patient-caregivers discuss how the disease has impacted their lives and the lives of their loved ones...]]></description><link>https://www.scdaact.org/post/the-impact-of-sickle-cell-disease</link><guid isPermaLink="false">60c783abe582580015904960</guid><pubDate>Mon, 14 Jun 2021 16:39:06 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/644c41_78d170f4cc184baa96537f3986102a07~mv2.jpg/v1/fit/w_630,h_280,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[Manage Your Health. Reduce SCD-related Complications ]]></title><description><![CDATA[People with sickle cell disease (SCD) are at greater risk for heart, lung, and kidney problems compared with the general population. If...]]></description><link>https://www.scdaact.org/post/manage-your-health-reduce-scd-related-complications</link><guid isPermaLink="false">603eed58cc61e0001549466e</guid><pubDate>Wed, 03 Mar 2021 02:45:08 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/644c41_a67e8fa1bc4f4fb4a5f3e530a68d32c2~mv2.png/v1/fit/w_850,h_447,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>SCDAA.SC</dc:creator></item><item><title><![CDATA[Recommendation for COVID-19 Preparedness]]></title><description><![CDATA[Health Alert for Patients and Caregivers March 17, 2020 - With COVID-19 on the forefront of nearly everyone’s minds, the Medical and...]]></description><link>https://www.scdaact.org/post/recommendation-for-covid-19-preparedness</link><guid isPermaLink="false">5e88da1c3c5e59001767d608</guid><pubDate>Sat, 04 Apr 2020 19:45:32 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a27d24_df36b402984a49eeaafff2202912ef83~mv2.jpg/v1/fit/w_592,h_297,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item></channel></rss>